Skip to main content

Posts

Showing posts with the label Siblings

Book Review: Autism and the Extended Family: A Guide for those Outside the Immediate Family who know and love Someone with Autism by Raun Melmed M.D. & Maria Wheeler M.Ed

Autism and the extended family is a book with an unusual feel to it. In fact, it's opening chapters felt so different that I was initially wondering if I would like the book. As it turns out, the language is completely appropriate and it is a good book. It's just that being as close to autism as I am, I'm not in the target audience. Where most autism books jump right in and talk about the details of autism from the inside, this book remains firmly outside the circle, keeping the outsider’s viewpoint. To be honest, the opening chapters reminded me a lot of “Autism speaks” literature but don't worry, it gets a lot better from there. The book is trying to speak to outsiders and it needs to use concepts that they can understand. This book talks about high functioning individuals but it feels much more like a book for families with more difficult and more "hands on" forms of autism. The book starts with a "welcome to my world" chapter,  I can'...

Book Review: Crystal Puzzle by Ashley Nance

Crystal Puzzle: Growing Up with a Sister with Asperger's by Ashley Nance Crystal Puzzle is a very interesting book which offers a rather different point of view to the usual autism biography story. Normally these books are written by one of three people; the person with Asperger's Syndrome, that person's mother or that person's doctor.  In this case the book has been written from the point of view of the sister (Ashley) of the person with Asperger's Syndrome (Crystal).  What makes this approach so interesting is that both Ashley and Crystal grow up through the course of the book and as they do so, their points of view and opinions change.  Fair Warning Before I start talking about the book, there are two things which I want to point out; Christian Language: There are quite a few instances in the book where Ashley talks very openly about religion and a couple of passages feel like sermons.  Since religion is a very personal thing, some people m...

Guest Post: Autism Spectrum Siblings Need Love and Guidance Too! by Trish Thorpe

The following is a guest post from Trish Thorpe , Author of "Fisheye: A Memoir" and "Asperger's Sibling Support: 15 Practical Tips for Parents/Caregivers".  Please take a moment to check out Trish's books. Autism Spectrum Siblings Need Love and Guidance Too! I'm 53 and the younger sister of an older brother (by two years) who had undiagnosed Asperger's while we were growing up (1960s and 1970s). My brother and I grew up with very unaware, self-involved parents. Short story...I spent years in therapy sorting through our family dynamics and learned so much about the kind of parental support needed to raise special needs kids and neurotypical siblings in a balanced home.  Here are some pictures of my brother and me when we were young: I'd like to share what I learned. I collaborated with my therapist and wrote a series of tips that will hopefully help parents and caregivers understand and support ASD siblings. My goal is to raise awa...