Life with Aspergers

My latest post on Special-ism is now available.  It's all about how we changed our kids school lunches to be more "squish and forget" friendly. If your child's school bag is always coming home with dozens of squashed and stinky mouldy sandwiches in it, then these changes could work for you too. Click over to Special-ism to read the post .

Child support essentials is a new series which looks at the essential roles in a special needs child's life, how they help the child and the ways they can hinder when applied improperly. Advocates play a very important role in a special needs child's life. They help the child get access to support and services, they stand up for the child's rights and they promote the child's needs without damaging their self esteem. In my opinion, the best advocates have a similar condition to the child they are supporting and they have a unique understanding of the child. I also think that the best advocates are free. I like to think of myself as an advocate. I spend a lot of time trying to raise awareness of Asperger's syndrome and "bust the myths about it". I'm always fighting negativity and highlighting the positive aspects of Asperger's syndrome. My efforts are directed towards helping others to understand and to better accept the differences in those on ...

There's an interview with me up on the One Quarter Mama blog , Click here to read it. http://www.onequartermama.ca/2013/09/wondrous-wednesdays-life-with-aspergers.html While you're there, have a good look around the site because the One Quarter Mama blog is really very good. It's written by a mother with autism who has a child on the spectrum and is written in an honest and engaging way with a dash of humour for good measure.

A couple of weeks ago I packed up my kids toys. It's not the end of toy playing for them but the toys are going on an extended hiatus. It's not even the fact that in all the years they have had them, they've never cleaned them up, despite promises of rewards or threats of punishment. After all, we solved the "Lego underfoot" problems by giving the kids their own toy room which we can easily close the door on instead of cleaning. Nope, it's because both boys have entered a destructive phase which I remember from my own childhood. For me, it all came to a head when I visited a friend's place and we watched TV together. There was This advertisement for "battle damaged derby cars" which sounded incredibly cool. Of course, my parents had financial issues; dad was out of work and my mother hadn't worked since I was born. There was no chance of getting the cars and even if there were, I'd be waiting about 10 months until Christmas. The ...

We've been through the IEP process many times for our kids. The IEP meetings we have now are fairly productive but both of my kids suffered for the first couple of years because we didn't have an effective working relationship with their teachers.  As parents we had certain expectations and as teachers, they had their own agenda. My wife and I would often talk about how much easier things would be if teachers just told us their plans.  Of course, at the same time, we didn't realize just how much we were leaving unsaid. "We Said, They Said" is a book in two parts. The first part contains 25 things that parents really wish they could say to teachers while the second is 25 things that teachers wish they could say to parents.  Reading through these, I saw myself and my wife in many of these - and I reached a much better understanding of the motivations and pressures of the teachers. The book starts with an introduction which is essentially a seven page discla...

I've been reading the (so far excellent) book; "We said, they said: 50 things parents and teachers of students with autism want each other to know" by Cassie Zupke.  A review is coming soon.  In the meantime, Chapter 5, entitled Hooey talks about the the confusing amount of contradictory and money-grabbing autism theory out there.   I thought it was probably worth my while stating my motivation and my point of view. Hooey is not a word we use in Australia.  I'm presuming it's an American word for bullsh1t.  That's how we say it in Australia. We tell it like it is. Motivation My motivation on this blog has always been to raise public awareness of Asperger's syndrome and to provide a more balanced and positive place for parents and people with Asperger's syndrome to learn about themselves and their children.  I don't claim to know everything but I do claim to have lived daily with Asperger's syndrome (if not the knowledge that I had it) fo...

My  Latest Post over at Special-ism is now up; It's called; " Kids with Isms can benefit from using Lists " Please have a look at it. It's all about how lists are one of the best tools for children (and adults) with Asperger's Syndrome and Autism and other similar conditions can really benefit from using lists as management tools.  If you're the parent of a very young child on the spectrum, this is still worth a read because I describe some pre-verbal lists which you may find your child is already using.