This post is bound to be a little controversial - sorry.
Technically, there is no medication that helps aspergers in general however Ritalin can relieve some of the symptoms. In this post, I'll attempt to explain what Ritalin does, which symptoms it addresses and how it affects youinger children.
Our experience
We have a seven-year-old son on Ritalin. Sometimes, we forget to give it to him. When this happens, we almost always get a phone call or a note from the school asking if we have forgotten to give him the medication. I think they have only ever asked once when we have actually given him the medication. It is therefore obvious that Ritalin provides a positive benefit in his behaviour and ability to work in class.
Interestingly enough, these comments come from teachers who were initially very resistant to the introduction of Ritalin. Such a turnaround implies obvious benefit.
The Ritalin does not suppress all of the aspie traits but instead allows him to think before acting. This reduces his impulsive behaviour while also preventing him from being distracted by everything around him.
It allows for better concentration and reduces his tendency to irritate his friends. We have asked our son how he feels on the medication and he has told us that he feels better. At age 7, there is not really a lot of information he can give us but we'll continue asking in case the situation changes.
We haven't seen any of the reported side-effects.
Is it safe? and What about the Side-Effects?
This is the question everyone wants answered before they give drugs to their child. In our case, we deliberated for about 6 months before starting and spent quite a while looking up the side-effects etc. We also looked at dietary changes and tried some natural remedies, like fish oil.
Ritalin has been in use since the 1960's as a treatment for ADHD. There have been lots of studies of its use. The most commonly reported side effects lack of sleep and lack of appetite. There have also been reports of stomach ache. Strangely enough, our son already had a reduced need for sleep and lack of hunger. I've had the same thing for most of my life (I once had a nickname of "sparrow" because of my eating habits). I've "normalised" in the last few years.
I think that the eating and sleeping may be aspie traits, which means that the Ritalin research could be flawed.
So far, research does not seem to have found anything too disturbing about Ritalin. There is evidence that it has minor effects on growth (in the early years but apparently kids catch up in the teen years). There is also evidence to suggest that it positively supports brain development.
There were also a lot of claims made that Ritalin, because of a similarity to cocaine, could lead to drug abuse. These claims have since been discredited. You can read a lot more about Ritalin on wikipedia.
Some people also report sweaty palms and a racing heart. There's a whole list of possible side-effects. I guess the best advice is: "If you notice any side-effects in your child - stop them taking the medication and see your pediatrician".
The other side-effect to look out for is "dopeyness". This indicates that the child is on too high a dose. The medication needs to be reduced.
Why does the need for medication increase?
This was a question I asked myself about a year ago. It turns out that the required dosage of ritalin depends on body weight. As the child grows, so does the required dosage.
Which symptoms does Ritalin Affect?
Ritalin is a stimulant which has a "calming effect reducing impulsive behavior, and facilitates concentration on work and other tasks".
Ritalin and Statistics
There are a lot of statistics around about Ritalin and all sorts of side effects. In pretty much every case I have seen, the studies don't have appropriate control groups. This means that the data in their statistics is meaningless. This lets us right into the Anti-Ritalin groups.
Anti Ritalin groups
There are two major anti-ritalin camps to be aware of;
1. Parents against drugs in Children
2. Scientologists
In both cases, the objection isn't specifically against Ritalin, it's against almost every drug used with children. The suggestion being that dieting or meditation is a better option.
I know of some people who swear by dieting but I'm yet to see compelling evidence to support it. As far as meditation is concerned, I'm not going there... especially not with a 7 year old.
If you find an article in the paper or on the internet, or if you see a programme on TV that raises specific concerns about Ritalin, you should always check to see if one of these Anti-Ritalin groups are behind it. Otherwise, you may find yourself needlessly worrying about things.
Of course, when all is said and done... remember, it's your child and you have a responsibility for their wellbeing. If the medication affects them adversely or if they don't show immediate improvement (say within 2 weeks of use) then you should discontinue.
I'll do another post on Ritalin at a later date to cover things like the effects of coming off the drug, school holidays and weekends and the difference between morning and afternoon effects.
Tuesday, December 11, 2007
Asperger's and Ritalin
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13 comments:
Galvin,
I am on medication myself, an anti-depressent (zoloft). The thing that worries me the most about medication and children (or people in general) is not the fact that they take medication but the fact that medication in my oppinion is often not used properly.
It seems to me that a lot of Doctors use medication as a "band aid" for an infection, instead of trying to deal with the issue - they just kinda band-aid it with medications.
There has also been the thing (and I've had to deal with this myself) where doctor's want to drug up people to the point that there mind is non-functional to stop behaviors that are not acceptable.
I'm not against medicating at all - I just think it should be done very carefully.
My Website
We have a 7-year old daughter with Asperger Syndrome. Three years ago, we tried the Feingold Diet treatment as an alternative to Ritalin and some of the other drugs and have had good success with it helping her attention span, anxiety, and general outbursts.
However, my wife and I found it somewhat difficult to find many of the Feingold-accepted foods, so we created The Asperger's Store which lists all the Feingold-accepted foods which Amazon.com carries.
Hopefully, this list will be of some help to others.
Craig
Here is some interesting research on Ritalin. "Ritalin abuse" is one of the biggest concerns of people searching for Ritalin online.
This site has info about Zoloft too.
I look forward to the day when everyone realizes what these substances really do to people's lives.
I have never tried Ritalin or Zoloft, but as a person I'm an very anti-drug person, without a doubt.
And I prefer to meditate rather than taking some medicine.
I have a very positive opinion regarding meditation. In fact, I actually love it! I have been training Kendo 2005-2006(2 years) and it involved meditation in this sport.
I enjoyed Kendo very much and will hopefully be able to train again in the future, although at the present I'm focusing on my IT/Computer skills instead and using Kendo exercises(suburri) outside near a lake when the weather is good. Relaxes the body and I promise that it works!
It's always been my hope/intention that my son will get off the ritalin when he gets old enough to manage his condition by himself.
Meditation is certainly one method which works for many people.
Unfortunately, my son is turning eight this weekend and he's not really old enough to understand mediation.
It's certainly a great idea for the future though.
My husband & I have been desperate to find help for our five year-old son with Asperger's. His level of hyperactivity is extreme. He is a danger to himself and to others when not medicated. Moreover, he is unable to participate in activities he otherwise enjoys because he can't sit still or focus long enough, even to play on the computer (which debunks the notion of those who think it's suspicious when a child with ADD attends to an enjoyable task but not to something less pleasant - must not really bee ADHD). Before medicating our child he was treated poorly by extended family members and friends who thought we simply weren't do a good job parenting. His grandparents could not tolerate being alone with him, which meant we had little support or a break in dealing with him ourselves. We usually are not able to keep a babysitter beyond a first visit because invariably, as his meds wear off during the evening, his behavior is too much for them to handle. So, whether you agree with medicating a child or not, please recognize that the need to do so in many cases is a legitimate medical necessity. Would you oppose chemo for a child with cancer? Would you oppose insulin for a child with diabetes? So why oppose a medication that enables a child's brain to function more effectively, thereby giving that child a more normal chance in life. We recently were convinced by our child's psychiatrist to try an antipsychotic called Risperdal because of the benefits it has for many children with autism. Unfortunately, it made our child's hyperactivity worse. They suggested we hospitalize him until a proper dose could be established. Well, two hours after getting back onto his ADHD meds he was functioning as close to normally as he ever can. He does well in school, is able to play with other children (rather than annoy and alienate them) and he's able to feel good about himself because he's not getting into trouble or irritating someone every thirty seconds. If you find something that works for you or your child that isn't pharmacalogical, then that's terrific. But for those of us who've watched our child suffer with a disorder that child has no control over, leave us be from condemnation. If things were any other way, we would not be in this situation. And, there but for the grace of "god" you go...
If the medicine works, then why not? I'm not against that.
Being a critic against greedy companies is a good thing, though, in my opinion.
There are bad medications and good ones.
My name is Lance Burnet and i would like to show you my personal experience with Ritalin.
I am 56 years old. I have taken Ritalin for 30 years. I have been diagnosed with a mild form of narcolepsy. I use 4 (10 MG ) pills per day. The drug ahs worked wonders and eliminated the drowsiness and sleep attacks. My concern now is the length of time I have been on it. When taking a "drug holiday" it seems like my symptoms are worse.
I have experienced some of these side effects-
rebound effect when dosage wears off.
I hope this information will be useful to others,
Lance Burnet
This is the best site I've found. My 16yr old son has always been different and early investigations could not come up with any diagnosis. On the day he was tested for Autism and Asperger he was normal although he did display autistic behaviour in all categories, not enough to come up with a diagnosis. My GP insisted he did not have ADD and because he was never hyperactive I never pushed it. After doing the speech occupational therapy and socializing skills rounds I slowly pulled back, because in his own way he was moving forward and I think the school psych thought I had more problems than my son did. My son has days where he is totally switched on and focused and then he has days where he displays all the Asperger/ADD/Dyslexia traits and we never know what to expect. We know he is highly intelligent in some areas but immature in others. As he is starting TEE I know he needs more than a tutor. As a Registered Nurse I have done enough research to be able to identify my sons problems and I know he needs Ritalin (and as I suspect I have similar problems I have self medicated and what an amazing difference) but recent psychiatric appointments have not established what I know my son needs. I am frustrated to the max because I know my child, and how many $250 appointments do I need to have before the psychiatrist agrees with what we know. Oh, and my son has also become an expert at masking his symptoms. What tools do I need to convince a psychiatrist that my son needs Ritalin. Kaz Fremantle
Kaz,
One of the big problems with Ritalin is that it enhances the performance of everyone, not just those with the ADHD Comorbid.
For this reason, there are some parents around who use it as a performance enhancing drug for their children.
Doctors and teachers are very wary of this trend and will generally deny Ritalin in cases where the parent or patient seems over-eager to obtain it.
If you feel certain that your son needs Ritalin (ie: that he has ADHD - because Ritalin is generally ineffective against normal Aspergers), then you should take him to a different psychiatrist.
The one you are seeing now has obviously made his mind up already.
I am 56 and have been using ritalin for 12 years; looking back over my adolescence now, I have so many regrets. Ritalin has brought creative energies and skills out in me that I never knew I had, and had obviously been repressed/dormant for 40+ years. As i feel the meaning of life is to develop and use our skills and creativity for common good ( otherwise we would still be living in caves ) I am now trying to make up for lost time.
Maybe you should check out http://www.ritalindeath.com it's very informative.
As you'd expect, as a concerned parent, I visited the Ritalin Death site and read it very carefully before making a decision to allow my child access to the drug.
All medications including Ritalin have side-effects. The site doesn't advocate using something in place of Ritalin, it is actually anti-drug.
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