I was just reading an article on;
Social Anxiety in High-functioning Children and Adolescents with Autism and Asperger Syndrome published in the Journal of Autism and Developmental Disorders.
As of 2020, it seems to be no longer available, probably because Asperger's syndrome has now been dropped from the DSM (V).
What I found particularly interesting
I've stated before on this blog that the only difference between Aspergers and High Functioning Autism is a language delay but I've always had this problem with my youngest child, who is diagnosed with HFA but is doing a lot of speech therapy.
You see, he's rapidly gaining language skills to the point where he's now certainly much more able to tell us what went on at preschool than my older (aspie) son did at the same age.
I keep thinking - what happens to the HFA diagnosis when the language delay disappears? My wife correctly surmised that it meant more than a simple "delay" in speech but I still couldn't quite get my head around the problem.
Did it mean writing? conversation?
It was this paragraph (from the translating autism blog (sadly also offline now) which helped me to understand the problem;
In regards to their social interactions, in my clinical experience and interaction we colleagues, we see a difference in their ‘relative’ need for social companionship. In general children with HFA seem to just want to be by themselves without an explicit desire to interact with peers. They interact when necessary and when such interaction is functional, but not for the “intrinsic joy” of having social interactions. On the other hand, children with AS tend to desire close relationships with peers and explicitly talk about wanting more friends, but their social uniqueness make the establishing of such relation more difficult."
This, I think, makes it very clear that they consider the "difference" to be less about a "language delay" and more about the interest in friendship itself.
One of these boys wants to be friends, the other prefers to play alone.
An Example
My youngest has certainly made massive gains in his language skills and is a better talker than his older brother was at the same age. He doesn't however have many friends - the few he has are mostly acquaintances.
To illustrate this;
Recently, we had an incident at preschool when my wife was dropping him off. Another boy was being dropped off at the same time and she was very pleased to meet our son. She said that's all he ever talks about whenever he gets home, T this and T that, guess what T did today.
The boy called out to our son and my wife said; "Oh look, your friend is calling you. Won't you introduce us? What's his name".
My son responded with "I don't know".
Unfortunately, the other boy's mother overheard and she burst into tears saying;
"How could he not know my son's name? They've been playing together for over a year!".
My wife was able to gloss over things by suggesting that he was just mucking around and that "he always does that" but it was nearly a much bigger incident.
Some thoughts on Social Anxiety...
There's one other thing that the post says about Aspergers which I'm sure you can already infer from the definitions above.
It suggests that if both HFA and Aspergers children have difficulty with social interactions but that HFA children don't care anyway.
Then Aspie children would be expected to have higher stress levels (social anxiety) than HFA children. Their trials however don't bear this out.
In tests of social anxiety with HFA, AS and NT children, both the HFA and AS groups had more or less the same levels while still being considerably more anxious than their neurotypical peers.
What's worse was that;
The anxiety problems tended to decrease with age in typically developing kids, but these problems increased with age in the children with HFA/AS.In my discussions with teenage and adult "Aspies", I've seen a high incidence of "loneliness" and other forms of social anxiety related to the inability to make friends. I haven't really noticed this as much in autistic adults.
This could be a perception thing on my part or the fact that I talk to many more diagnosed aspies than HFA's.
I'd really like to see what the results would be if this study were to be redone with adult aspies and high functioning autistics, though with the removal of the Asperger's label in the DSM V, it's become something of a moot point.
Comments
As a kid I was very social and wanted friends. However now at 56, I just don't bother. I would love to have friends, but it just never works out and when I need to go into what my autistic friend calls "radio silence" and just not deal with people, they never understand. I'm lonely, but the pain of another friendship being ended by the "friend" is just too much.
I believe NT's social anxiety drops as they get older because they gain more social skills and confidence in their abilities with practice. While AS's gain skills, they are more aware of the gap between their skills and the social standards they will be held up to.
I am wondering if this virus might in part explain the worldwide rise in autism. The virus is easily passed to other people in normal household contact, or in normal social contact, so it could well be one of the causal factors behind the autism epidemic.
For more info on this autism-like virus, see here:
http://chronicsorethroat.wordpress.com
I am posting this, as I wish to help in the process of bringing to light the likely causes of the autism epidemic.
There are plenty of articles on the subject but most carry plenty of bias and are written with quite different objectives in mind. Many also have links to the church of Scientology who are well known for interference in autism research.
While the causes of autism are largely unknown, it is impossible to ignore the genetic components, particularly in Aspergers autism.
I think the difference may be that kids with HFA have AS plus impairment in the speech area. This impairment may not only prevent or delay speech, it also impairs comprehension of other people's speech.
The result: A much greater degree of disengagement.
That does not add up to a DESIRE to be disengaged. It's simply a natural result of an inability to understand.
That's a very interesting theory which I'm going to have to follow up. I'll see if I can find any HFA people to talk to.
Thanks.
Is there an age where a child is too young to be diagnosed with Aspergers? I ask because most of my reading indicates that children with aspergers aren't usually recognized into they are put into a school envioronment.
Would having a child evaluated young, say at the age of 3 or so, exclude them from an Aspergers diagnosis?
Personally, unless your child has severe difficulties, I'd recommend that you follow normal remedial practices (eg: Speech Therapy) until they at least reach school age.
The exception to this would be when they have a sibling with the condition already. Even then, sometimes it's better not to rush into a diagnosis.
www.privettblog.blogspot.com